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July 2015

PCORnet Best Practices Sharing Session: Keith Marsolo – July 8

July 8, 2015 @ 1:00 pm - 2:00 pm

Multi-center Chronic Disease Registries in a Learning Health Systems Presenter: Keith Marsolo, PhD Associate Professor, UC Department of Pediatrics Wednesday, July 8, 2015 1:00-2:00 p.m. ET Webinar information: Phone: 1-855-244-8681 (toll-free) Access code: 732 216 431 Online: https://dukemed.webex.com/dukemed/j.php?MTID=m548aadf0385cbcc32e1fa2b26dded4f3

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PCORnet Best Practices Sharing Session: Ed Hammond – July 15

July 15, 2015 @ 8:00 am - 5:00 pm

ONC Structured Data Capture initiative Presenter: W. Ed Hammond, PhD, FACMI, FAIMBE, FIMIA, FHL7 Director, Duke Center for Health Informatics, Duke Translational Medicine Institute Wednesday, July 15, 2015 1:00-2:00 p.m. ET Webinar information: Phone: 1-855-244-8681 (toll-free) Access code: 735 661 890 Online: https://dukemed.webex.com/dukemed/j.php?MTID=mb4f03193c677b6b138cc87b22c575931

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PCORnet Best Practices Sharing Session: Ed Hammond – July 21

July 21, 2015 @ 2:30 pm - 3:30 pm

Data Access Framework, a component of the ONC Structured Data Capture initiative Presenter: W. Ed Hammond, PhD, FACMI, FAIMBE, FIMIA, FHL7 Director, Duke Center for Health Informatics, Duke Translational Medicine Institute Tuesday, July 21, 2015 2:30-3:30 p.m. ET Webinar information: Phone: 1-855-244-8681 (toll-free) Access code: 736 250 518 Online: https://dukemed.webex.com/dukemed/j.php?MTID=mc99794f5fafeb5d4ce842c8e03c44757

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August 2015

Best Practice Session Sharing: SEDI Computable Phenotypes – August 5

August 5, 2015 @ 1:00 pm - 2:00 pm

Adventures in EHR Computable Phenotypes: Lessons Learned from the Southeastern Diabetes Initiative (SED) Presenters: Rachel Richesson, MS, PhD, MPH, FACMI, Duke Clinical Research Institute Wednesday, August 5, 2015 1:00-2:00 p.m. ET Agenda: Introduction Presentation by Shelley Rusincovitch, Rachel Richesson, PhD, MS, MPH, FACMI, and Ben Goldstein, PhD, MPH - Duke University Presentation Title: Adventures in EHR Computable Phenotypes: Lessons Learned from the Southeastern Diabetes Initiative (SEDI) Facilitated Discussion Webinar information: Phone: 1-855-244-8681 (toll-free) Access code: 733 025 863 Meeting password:…

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Best Practice Session Sharing: Tyrus Rorick & Emily Sheffer – August 18

August 18, 2015 @ 11:00 am - 12:00 pm

Update on IRBShare for PCORnet Presenters: Tyrus Rorick - Assistant Director, MegaTrials, Duke Clinical Research Institute Emily Sheffer, MPA - Research Services Consultant, Vanderbilt University Tuesday, August 18, 2015 11:00 a.m.-12:00 p.m. ET Agenda: Introduction Presentation Facilitated Discussion Webinar information: Phone: 1-855-244-8681 (toll-free) or 1-650-479-3207 (toll) Access code: 737 370 536 Online: https://dukemed.webex.com/dukemed/j.php?MTID=m0e92ffe6e476739bf20b21362beab6e4

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February 2017

Facebook Live

February 13, 2017 @ 11:30 am - 12:00 pm

Join us for a second FB Live event from Duke University Medical Center. Doctors and ADAPTABLE investigators, Matthew Roe and Schuyler Jones, will be joined by a patient with heart disease and will be available to answer your questions about the ADAPTABLE Study, aspirin dose, and heart disease. Stay tuned to www.facebook.com/ADAPTABLEstudy/ for more details.  

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March 2017

ADAPTABLE Study Patient Engagement Panel at ACC

March 18, 2017 @ 2:45 pm - 3:30 pm
Walter E. Washington Convention Center 801, Mount Vernon Place NW, Washington, DC 20001

[youtube https://www.youtube.com/watch?v=nSpfjRdZpJk?list=PLLDSnGRhOEw9JarI4O6gWTaNYth1IAmHr] Panelists Henry Cruz Patient Research Partner (Adaptor) NYC-Clinical Data Research Network Tom McCormick Patient Research Partner (Adaptor) PaTH Clinical Data Research Network Robert Califf, MD Professor of Cardiology, Duke University School of Medicine Former Commissioner, Food and Drug Administration Sandeep Jain, MD Associate Professor of Medicine, University of Pittsburgh PaTH Clinical Research Data Network Eileen M. Handberg, PhD, ARNP Co-Director, OneFlorida Clinical Data Research Network Research Professor of Medicine Fred Masoudi, MD, MSPH, FACC Professor of Medicine-Cardiology, University…

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June 2017

ADAPTABLE: Embracing Patient-Partnered Research

June 9, 2017 @ 1:00 pm - 2:00 pm

NIH Collaboratory Grand Rounds Presents ADAPTABLE: Embracing Patient-Partnered Research Speakers: Matthew T. Roe, MD, MHS Duke Clinical Research Institute ADAPTABLE, PI Holly Robertson, PhD Duke Clinical Research Institute ADAPTABLE, Project Leader Madelaine Faulkner, MPH Health eHeart Alliance (PPRN) Project Director ADAPTORs (Patient Partners) Linda Brown, Mid-South CDRN Ken Gregoire, REACHnet CDRN Tom McCormick, PaTH CDRN Bill Larsen, OneFlorida CDRN    

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March 2018

Lessons Learned in ADAPTABLE: Recruitment, Retention, and Endpoint Ascertainment

March 7, 2018 @ 2:00 pm - 3:00 pm

At the March PCORnet Best Practice Sharing Session, Co-Principal Investigator Schuyler Jones and Project Leader Holly Robertson will share early lessons from the design and conduct of The ADAPTABLE Study, the first prospective, large, pragmatic trial conducted within PCORnet. The discussion will focus on recruitment, retention, and endpoint ascertainment. Schuyler Jones is an interventional cardiologist and his clinical interests include peripheral artery disease, coronary artery disease, and percutaneous coronary intervention. Currently, he serves as  director of the Duke University Cardiac Catheterization…

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March 2019

Ask the Experts at American College of Cardiology (ACC) 2019

March 17 @ 9:30 am - 10:30 am
Ernest N. Morial Convention Center New Orleans, Louisiana

Stop by the DCRI Booth (#1819) at ACC 2019 to meet the ADAPTABLE Study Team experts as they discuss the successes and learned experiences of a patient-centered pragmatic clinical trial. Team members will discuss engaging patients as partners, and leveraging electronic health records and claims data to recruit participants and capture primary endpoints. Come with your questions for our faculty, project leaders, and patient partners.

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